Coming December 2026
A Note About the Book
I was confronted with one decision after another today. The events washed over my body like a torrent of hurricane-pushed breakers. Having, you know, those awful recurring thoughts. The brutality of trying to keep my head above water day after day in the AcidStream makes even the simplest tasks difficult. My quadriplegia did not happen all at once. It crept up on me. A tingling in my left foot, a small loss here, another small loss there, like the proverbial death by a thousand paper cuts. This morning was a struggle.
I simply could not sleep last night because of ongoing muscle spasms. Living with chronic pain from the neck down is hard; there is not a square centimeter on my body from my neck to my toes that does not hurt. And from my neck up, I have seborrheic dermatitis, which means I’m itching like a crazy person most of the time.
I was not happy with God this morning. But God is not the culprit here. To survive this journey, we have to stay focused on reality. The reality of navigating governmental systems that are designed to help us, but often make things worse. The reality of looking at our bodies in the mirror and not being thrilled by what we see. It is not an easy road.
But this life is worth living. You bet it is. I am fully convinced God did not put us here to torture us. We are His kids, no matter how old we are. And I know He hurts worse than I do when I curse Him out because I believe He allowed this to happen to me. But the reality is, I do not really know. I am not a theologian, I am not a philosopher, I am just another person like you trying to make my way through life’s journey. Nobody gets out of here without a few scars, and each one of those scars tells a story.
So today I ask for His forgiveness, and I persevere. Each and every one of us in the AcidStream deserves to be treated with dignity and respect by other individuals who have not had to walk this journey. Additionally, we need to treat ourselves with dignity and respect! We have to advocate for ourselves and keep pushing no matter the obstacles in our way.
We have to forgive ourselves and others and move on. Above all, we grieve. I have decided to put “Swimming in the AcidStream: A Guidebook for People with Physical Disabilities” on Amazon and give it a little wider distribution. It is just a small (30-chapter) self-published book. But if I had a penny for every tear I have shed while writing it, I would make Warren Buffett look like a pauper.
I give it to you with hopes that it will encourage you and bring a powerful new perspective to your swim in the AcidStream.
PS: The book will be available on Amazon in December 2026.
— Kerry